Recommended Reading:

ISABELLA'S JOURNEY
Serafina Sammarco - Author
 A mother's in depth first-hand experience with her daughters illness explained in her published memoir.
http://www.sammarco.ca/
http://www.isabellasjourney.ca/

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Recommended Movies:

Blood Relative
Can one man save thousands of lives? Blood Relative follows the remarkable story of Indian activist Vinay Shetty, who is fighting to save children who are dying from the blood disease Thalassemia.
http://www.bloodrelative.org/
http://www.thinkfoundation.org/